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The Alpha-1 Foundation offers a confidential opportunity to be tested for Alpha-1 through the Alpha-1 Coded Testing (ACT) Study. This research study is through the Alpha-1 Foundation and examines people’s thoughts and feelings about the risks and benefits associated with learning genetic information.
The Alpha-1 Foundation is dedicated to providing the leadership and resources that will result in increased research, improved health, worldwide detection and a cure for Alpha-1 Antitrypsin Deficiency.
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Located at the Alpha-1 Foundation, Miami, FL, the Registry employs procedures that ensure the most stringent confidentiality of participants. The Registry operates under the direction of the Alpha-1 Foundation Board of Directors and is guided by an Advisory Committee comprised of leaders in the medical, ethical, scientific and Alpha communities.
The Virtual Walk allows you to walk anywhere, anytime during the month of November in support of Alpha-1 awareness!
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The Alpha-1 Foundation supports testing for those at risk for Alpha-1. In response to concerns surrounding testing, privacy and the benefit of an early diagnosis, the Alpha-1 Foundation developed a free and confidential opportunity for testing. This is a research study …
Overview: The Alpha-1 Foundation is a not-for-profit Florida-based corporation founded in 1995 by John Walsh, Susan Stanley and Sandy Lindsey, three individuals diagnosed with Alpha-1 Antitrypsin Deficiency (AAT Deficiency or Alpha-1).
Alpha-1 Foundation is rated 4 out of 4 stars by Charity Navigator. Alpha-1 Foundation receives 93.26 out of 100 for their Charity Navigator rating. Alpha-1 Foundation is a Diseases, Disorders, and Disciplines charity located in Coral Gables, FL. The organization is run by Henry R. Moehring and has an annual revenue of $10,631,929.4/4